Waltham Forest: Borough of Couldn’t Care Less About Kids? by Ken Barlow

The start of the new school term – a time when the blood pressure of the average parent rises faster than mercury on a hot day.  A time when coaxing children conditioned by holiday slovenliness into getting out of bed, wolfing down their cereal and getting their bloody shoes on, please god, we’ve only got five minutes and we can’t can’t can’t be late on the first day is enough to fray the nerves of even the most laid-back.  However, for those parents whose children have disabilities which require Waltham Forest Council to arrange transport to and from school, the start of the latest school year – already difficult enough at the best of times – has been nothing short of a Kafka-esque nightmare.  Grave concerns had previously been raised about changes to transport provision, as well as the lack of meaningful consultation with parents and children affected.  The Council’s response to these concerns was that the changes had been made in order ‘to involve parents and carers more pro-actively in the process to work in partnership in finding more creative solutions to getting to school’, which indicates, firstly, that they need to employ a competent copyeditor, and, secondly, that their definition of ‘creative’ is what the average person would term ‘batshit crazy’.

Where to begin?

Parents are legally entitled to 5 days’ notice about the Council’s plans to get their children to school.  Even this, in reality, is grossly inadequate, and as MP for Walthamstow Stella Creasy has said in her response to the emerging fiasco, ‘we have encouraged the Council to recognise that parents would require this information at least a month before implementation to enable them to appeal or make the necessary arrangements.’  What is truly shocking, however, is that the company contracted by the council to provide transport, CT Plus, failed even to meet this legal minimum.  On the first day of school, many parents were left not knowing if their children were being picked up, let alone where.  One parent reported that even by the Friday of the first week of school their situation was still up in the air, with no bus allocated to his son due to a ‘mix up’.

To make matters worse, whereas previously buses would collect children from their homes, the ‘creative’ solution arrived upon – supposedly in consultation with parents – has been to replace this with ‘pick up points’, where kids must be taken to await collection, come rain or shine.  One parent reported being allocated a bus that arrived a full 40 minutes earlier than their previous slot, to which must be added the time needed to get their child from the house to the pick-up point.  Their son, who is on the autistic spectrum, was accustomed to getting himself ready and leaving the house on his own. With no warning given of the change, his parents were unable to properly prepare him for his new routine, leaving him understandably distraught.  Another parent turned up with their child at the designated time and place, only for the bus to arrive almost 40 minutes late. To make matters worse, the driver thought it appropriate to wait in the middle of a main road for the children to board.

Shambolic as the service has been, at least the parents above have been allocated buses.  A number of other parents were told that their children would no longer be eligible for school transport at all.  They should fear not, though, as instead they would be provided with ‘travel training’.  Problem solved.  What this travel training would actually entail was never explained, however, and sure enough, shortly before the start of term said parents received letters informing them that the training had gone the way of the Thames Garden Bridge – promised as a sure thing only to be declared as dead in the water.  Rather than being given buses parents have been thrown under them, abandoned without even the faintest pretence of support.

The above are just a few of the many shameful stories that have been shared by parents in the past couple of weeks.  The situation would be outrageous enough but for the sad fact this is merely the latest in a long line of fiascoes overseen by Waltham Forest Council.  As one parent angrily pointed out, ‘Every year, to a differing degrees, something goes very wrong with transport. Every year parents make complaints and someone in power makes a statement. Every year nothing changes.’  Moreover, problems are by no means limited to issues of transport.  As the parent of a child on the autistic spectrum I can personally attest to the dire state of speech therapy in the borough, the lack of early years intervention, as well as the difficulties both of obtaining an Education Health and Care (EHC) Plan and ensuring its (supposedly legally binding) stipulations are met.  Meanwhile, services for children with serious mental health issues in the borough have been cut to the bone, as was made brutally apparent in a recent episode of Panorama.   This, it seems, is the new normal.

The current situation has been exacerbated by a woeful lack of communication, both by CT Plus and the Council.  As one parent vented, ‘Why is it virtually impossible to speak to anyone? And why does no one ever ring back when they say they will?’  CT Plus have responded that they received 1,500 calls in the week in question and ‘therefore many were missed’, as if this were some kind of excuse rather than a damning indictment of the ineptitude that is at the root of this situation.  Frustrating, too, is the seeming inability for anyone in authority to acknowledge the true scale of the problem, let alone take responsibility for it.  Instead, we are left with a void where buck-passing and blame-dodging preside, where services are outsourced without due diligence, and then when the shit inevitably hits the fan those who should be taking the reins instead scramble for cover.  Yes, CT Plus have fallen abysmally short, but it is the Council that contracted them, that when putting the contract out to tender specified that the new system be based on drop-off and pick up points, that in the contract stipulated CT Plus was only required to give five days’ notice (to reiterate, the bare legal minimum) to parents about changes to transport.  Ultimately, it is the Council – and by this I mean both Councillors and the relevant personnel employed by the Council – who must shoulder the blame. And, boy, there is a lot of blame to shoulder.

In 2019, Waltham Forest will be London Borough of Culture.  When this was announced, many of us took considerable civic pride in this achievement.  Since then, though, the Council’s (and certain councillors’) self-satisfied crowing, against a backdrop of deep and damaging cuts, has begun to stick in the throat.  In particular, it is difficult to see how the council can justify a 2.3% (£651,000) reduction in High Needs funding for 2018/19 at the same time as approving an increase in expenses allowances for councillors.  No one wants to poop the Borough of Culture party, it would just be reassuring if those in authority could muster a similar level of enthusiasm for dealing with the severe and pressing issues facing parents and children in the Borough.  Last year, the chairwoman of the UN’s Committee on the Rights of Persons with Disabilities (CRPD) went on record as saying Government welfare cuts have created a ‘human catastrophe’ for disabled people in the UK. Whilst such callous indifference might almost be expected of a Tory government, it is both sad and disturbing to see Waltham Forest Council playing its own small part in making that human catastrophe a reality on the ground.

What can you do to help?

Write to your local councillors and/or MP to express your concern – you can do it here: https://www.writetothem.com

Join the Waltham Forest Special Education Crisis Facebook Group.

Follow Waltham Forest special education crisis on Twitter: @SENDCrisisWF

Our stories: Stop special needs cuts!

Today, as we go to protest at Waltham Forest Town Hall, we are sharing some of our stories. They are our accounts of the impact of not prioritising the care of children with special needs, mental health problems and disability and the impact on our children and our families. They have been written by parents who are involved in our campaign in their own words, and have been anonymised to protect the identity of the children involved.

Today, we are calling for Waltham Forest to stop cutting services for children with special needs, mental health problems and disability!

“I have an eight year old child at special school, we have received home school transport since they were three. The school is 1.5 miles away and there is no direct bus route, this year we applied for transport as usual, we were turned down for a bus place and offered ‘mileage reimbursement’ instead. This was useless as I don’t drive and getting two buses during rush hour would be impossible. The reimbursement rate is 40p a mile, a cab fare from my house to school is five pounds. At review we got our bus place back, but the experience was unbelievably stressful. On a final note I’m extremely disappointed with the way the council are attempting to make these changes about ‘choice’ and ‘independence’, getting the bus is the one bit of independence my daughter has in her day.”

………………………………………………………………………………….

We were refused an education health and care assessment in September despite a massive amount of evidence of my son’s needs, we were told verbally that it was because not enough time had elapsed. This was pointed out by a SENDIASS member as an unlawful reason. My son had reached a budget of nearly £28k and still they refused to assess or give a written reason for it.

“We were pushed into a corner that no other family should be put in, and had to indebt ourselves to the tune of £1800 in order to pay for a private assessment. The day the diagnosis report was received by the council, they changed their minds. Nothing had changed for my son, only that there was now a name to his needs. This is unlawful and needs to stop. We have now had our final plan which we are happy with, and it came in just under the 20 week process.”

………………………………………………………………………………………….

“We didn’t expect to have a child with special needs. When a speech therapist suggested my son might have autism my partner and I were shocked, we had no idea. We were referred for assessment, but all the professionals warned us that the waiting times had escalated in Waltham Forest in recent years. We heard absolutely nothing for 6 months after referral – which was agony. Then we went through a series of assessments – each with excessively long waiting lists – when all I wanted was someone to tell me how to support my child. The professionals in the child development team are so overstretched that reports don’t get written up for months after the appointment – sometimes they never get written up.

“At 3 my son had the language of a 15 month old, but that didn’t qualify us for speech therapy in this borough. Pretty much no one gets actual speech therapy in the borough now – all the access to this has been cut. We have not seen an occupational therapist or had portage where someone comes to your house to help you support your child. My son was diagnosed with autism in June 2017 and since then we have only had access to a one day post diagnosis course – which was too late and brief to be useful.

“We have had to stretch our family finances to pay for a private speech therapist, which has enabled my son to talk properly for the first time. I can’t imagine what would have happened if we had not been able to afford this. Our nursery suggested we get our son in school as soon as possible due to the current lack of preschool special needs support. I have spoken to parents in other boroughs – Hackney and Tower Hamlets and despite similar cuts to council budgets, they are getting access to speech therapy, occupational therapy, early intervention packages and portage. I can’t understand how Waltham Forest could have cut all these services and done this to children and their families.”

……………………………………………………………………………………………….

“I did actually expect to have a child with special needs as my daughter is adopted. In the adoption preparation groups you are braced for uncertainty. I can’t imagine how hard it must be to have birth child who is suddenly diagnosed. On the other hand you can never really prepare yourself – our daughter was in care at 5 weeks old so we thought she would be one of the easier ones – turns out the opposite is true. I know this because I’ve now read a mountain of books on developmental trauma – no social worker ever told me this.

“There are specific systems to support looked after and ex-looked after children, but they are inadequate. And there seems to be a complete knowledge gap about developmental trauma amongst NHS staff. Despite everyone knowing how much looked after children and ex-looked after children struggle with everything in life (worst exclusion rates, worst education outcomes, most likely to end up with criminal record and mental health issues etc.) you still have to fight for absolutely everything.

“I’m only just starting our EHCP process so I don’t have much experience of the SEN system in Waltham Forest (most of our support has come from specialist agencies in central London) but I’m bracing myself for it being (yet another) tough one.”

………………………………………………..

“Our initial appointment with a Locum Paediatrician at Wood Street in 2016 was shocking. This doctor hadn’t read any of my daughter’s notes and hardly examined her. The appointment was confusing and didn’t shed any light on anything. We then received a report in the post a number of weeks later stating our child had ‘Global Developmental Delay’. Not at any point during this consultation had this ‘diagnosis’ come up let alone described what it was! I therefore googled the term which as you can imagine, sent me in to a complete frenzy.

“The only positive experience from the initial consultation was meeting our fantastic portage worker who started off by visiting every couple of weeks then once a month. Unfortunately she left and that was it, we didn’t get anyone else. During this time we had one speech therapy session and we were immediately discharged after one session as my daughter’s delay wasn’t significant enough despite my concerns. A year later and she was falling further behind her peers and they were still unable to provide us with a speech and language appointment. I pushed for a further appointment with a Paediatrician and was seen by yet another locum who again hadn’t read any of my daughter’s history and we spent half of the appointment updating him on this. Again, we came away feeling completely unsupported. At this point we had no choice but to save for a private speech therapist as we weren’t getting anywhere.

………………………………………

“My son was diagnosed with autism 6 years ago aged almost 4. At the time, post diagnosis, we were heartbroken but at least then there was some support in Waltham Forest through good beginnings and community nurse home visits, which have sadly since been cut.

“While we were given support initially the schools weren’t. Things he clearly needed, in class support with literacy, nurture groups for his significantly delayed social skills, or quiet spaces and support at lunch times to allay his rising anxieties were not even thought of let alone provided. He was not a priority because he held a lot in and followed the rules. Well at school at least. At home, his meltdowns after being at school could last hours, his sleep decreased and anxieties steadily increased. With teachers or SENCOs unable to address our concerns, we went through three schools in three years.

“When we finally found a school that attempted to address his needs, we slowly realised that it was too little too late. The anxiety levels had built momentum to such an extent that he can no longer hold in his stress during the school day, leading to regular panic attacks, tears and withdrawals.

Three attempts to apply for an EHC plan failed. Once due to lack of support from a previous school and twice due to refusals by the Local Authority. I had to become my own lawyer, spending weeks talking to other parents, reading up on case law and researching scientific papers to take the Local Authority to a tribunal. Within days, the Local Authority reversed their most recent refusal and agreed to assess for an EHCP. But we know this is only the beginning of further struggles due to budget cuts. While the current school is doing its upmost, experts have recommended specialist input from the NHS for his anxiety.

“When I visited specialist children’s services, they told me it was me that had to become an expert about my child because there just wasn’t the same service anymore due to all the cuts. They said CAMHS (community mental health services for children) had effectively closed referrals to all but the most severe. I feel stretched to breaking point and it’s clear to me that some of the most vulnerable children in our society are no longer afforded even the mininum of care and protection they deserve and that parents are in their own.”

…………………….

“Back in 2015 I began to think about what would happen when my daughter left South Grove primary school, which has a resourced provision for children with developmental delay. It soon became clear that special school was the only local option for a child with my daughter’s level of cognitive impairment: I was informed that no mainstream school could meet her needs. Technically I could have insisted: but no local school I approached had the interest or means to include her in any meaningful way.

“This law http://www.legislation.gov.uk/…/2014/6/section/27/enacted means Local Authorities are supposed to ensure that there are enough school places to meet needs. This should mean meaningful choice at every level of education from nursery to Further Education college. My daughter’s place is in her community, with her peers, in a school which celebrates (not begrudgingly accommodates) her needs.”

Waltham Forest Special Education Crisis PROTEST: Stop special needs cuts!

6pm Thursday 24 May: Waltham Forest Town Hall, E17 4JF 

All welcome

Children with special needs and disability are being failed in Waltham Forest, including practices likely to be unlawful under the Children and Families Act 2014.

  • Mental health services have closed their books to children in the area unless they are suicidal or self-harming. We are calling for services to reopen for all kids in need!
  • Children with special needs and disability have been refused adequate transport to school. We are calling for the system that denies transport as a default to be overhauled!
  • This year 2.3% will be cut from the high needs education budget in Waltham Forest, despite increasing numbers of children needing support. We are calling for this cut to be reversed – as well as details of what the proposed cut entailed – and for all children in Waltham Forest to have a fair chance of an education!
  • In Waltham Forest children face unnecessary, and likely unlawful, barriers to getting access to vital support via an Education, Health and Care plan. We are calling for the Council to publish the criteria used to determine whether or not children are assessed and to take steps to make sure the system is equitable, fair and lawful!
  • Children in the borough face excessive waiting times, often a year, for treatments such as speech and occupational therapy, and the number of therapists available has deliberately been reduced in recent years. We are calling for the Council to give reasonable access to services!
  • Unsupported children with special needs are being forced out of classes and put on reduced timetables. Many who want be in mainstream schools are being forced out because financial restrictions mean inclusivity is no longer a priority. The Council are not catering for all children, for example they are currently no options for children with severe learning disabilities in mainstream secondary schools in the borough. Parents who can’t find the right school space for their child are being forced to home educate. We are calling on the council not to discriminate against children with special needs and disability and provide a full education in an appropriate setting – a legal requirement – to ALL children in the borough!
  • Preschool services for children with special needs and disability have seen brutal cuts. We are calling on the council to reinstate its relationship with the National Autistic Society to run courses, to reinstate evidence-based early intervention programmes, and to fund ‘Somewhere to Belong’, a new playgroup for kids with special needs and disability!

Children with special needs, mental health problems and disability in Waltham Forest deserve support, treatment and an education.

This affects us all: If special needs children aren’t supported, the education of all children in the borough will suffer.

Please join us to send a message to the council that our children matter and there must be no more cuts.

Twitter: @SENDCrisisWF

Facebook group: Waltham Forest Special Needs Crisis

Web: https://sendcrisiswf.wordpress.com/

Email: wfsendcrisis@gmail.com

Waltham Forest Special Education Crisis briefing

This presentation was given to the Waltham Forest Council Children and Families Scrutiny Committee on 25 April 2018. It provides a snapshot of the current state of special educational needs and disability services for children in Waltham Forest. We are continuing to collect evidence and will update as we find out more.

 

I am a local parent with an autistic 3 year old son and part of the organising group of Waltham Forest Special Education Crisis. We have been brought together by our collective concerns about special needs and disability education services in Waltham Forest. Our organising committee has around 50 members, and our wider group has 150 members. Some of our members are here tonight.

 

We have a number of concerns we would like to raise:

 

On Education Health and Care Plans (the main way children with special needs and disability get support) we are concerned about the hurdles that Waltham Forest puts in the way of parents before they are allowed to request an EHC Plan. We have heard from both parents and professionals unequivocally that schools have to spend £6000 before they can apply for a plan. We have examined the Children and Families Act 2014, section 361 and do not see any such criteria that needs to be in place to request a plan. We are deeply concerned that this means that children in need of a plan may not receive one. EHCPs are legally binding documents that comprehensively support the children’s needs – SEN plans do not provide this. We note that Hackney families2 have successfully opposed a similar system to Waltham Forest’s after significant concerns about the legality of the proposals were raised by IPSEA3, RNIB and the National Deaf Children’s association.  Can you confirm whether the current system in Waltham Forest is lawful? Can the Council confirm that a £6000 spend is not, and has never been, a part of the process to determine whether an EHCP is granted?

 

In addition to this we are very concerned to see in the recent Oftsted report4  that most EHC plans go over the 20 week deadline and that professionals are not feeding in adequately. Even recent improvements still see a considerable number going over deadline. We want to see these deficiencies rectified as quickly as possible.
We are alarmed to see proposed 2.3% in year savings for the education of children with high needs to be implemented this year – as detailed in March 2018 cabinet meeting minutes5. We are asking where these savings will be made and when? What impact do the Council believe these cuts will have on children in the borough?

 

Speaking to SENCOs in the area they believe the number of children requiring EHC Plans in the borough is increasing. With more plans needed and a planned reduction in budget – this raises serious questions about whether there will be enough money to adequately support our children. We would like details about how the Council will prevent this risk becoming a reality?

 

We would like to raise the issue of school special needs transport6 and note that over 200 families requested a review after the recent offer letters went out and some are now expecting to go to appeal. This process has caused excessive distress to families in our group and the wider community. We want to know how and when this system will be reviewed to prevent this happening again?

 

Supporting children with special needs and disability begins before they go to school. We note that there are excessive waiting times for preschool services such as speech therapy, occupational therapy and assessments. Early intervention programmes for children such as Early Bird7 and Good Beginnings were cut and never replaced. On this issue we wanted to ask whether Waltham Forest is implementing revised duties under the Children and Families Act8 and SEND Code of Practice9?

 

We are also extremely concerned to hear about the excessive waits for community mental health services for children. Not only is this having a detrimental impact on their ability to learn but it is leading to the most serious outcomes for the children’s health and wellbeing. We would like to find out the current waiting times for appointments in the borough, and whether the Council is confident this service is adequately supporting our children?

 

The final point we wanted to make is that if we don’t support the education of children with special needs and disability all our children will suffer.

 

I never expected to become a parent to a disabled child – but how well my child is supported a mainstream school impacts on the ability of all children in that class to learn. This is a problems for all of us and we all need to see things improve.

 

I will send on an electronic copy to the committee administration after the meeting and would like the presentation in full to be included in the minutes to this meeting.

Brief produced with members of the Waltham Forest Special Needs Crisis organising committee

 

References

  1. http://www.legislation.gov.uk/ukpga/2014/6/section/36/enacted
  2. https://www.hackneycitizen.co.uk/2017/11/27/hackney-parents-slam-catastrophic-plans-cut-high-needs-funding/
  3. https://www.hackneyspecialeducationcrisis.co.uk/uploads/1/6/4/3/16439800/ipse_response.pdf
  4. http://walthamforest.moderngov.co.uk/documents/s61021/3%20-%20AppA%20LASEND%20Letter%20Waltham%20Forest%20Letter.pdf
  5. http://democracy.walthamforest.gov.uk/documents/s60550/School%20Budgets%202018-19%20Draft%20Cabinet%20Report%20v3.pdf
  6. https://you.38degrees.org.uk/petitions/special-education-needs-and-disability-school-transport-crisis-waltham-forest
  7. http://www.autism.org.uk/earlybirdteams
  8. http://www.legislation.gov.uk/ukpga/2014/6/contents/enacted
  9. https://www.gov.uk/government/publications/send-code-of-practice-0-to-25

 

More information about Waltham Forest Special Needs Crisis

Twitter: @SENDCrisisWF

Facebook group (public): Waltham Forest Special Needs Crisis

Web: https://sendcrisiswf.wordpress.com/

Email: wfsendcrisis@gmail.com

Transport petition – please share and sign

We need your help: Please sign this petition!

In February hundreds of children with special educational needs and disability (SEND) in Waltham Forest had their school transport cut. Parents got letters saying their children were no longer eligible for buses to take them to school, and were offered alternatives like mileage allowances that were simply unworkable. Some parents have appealed and had the decisions overturned, but there will be many more who don’t know they can appeal or who are not able to. This has been incredibly stressful for the families that have been affected.

These children were previously eligible, so the Council seems to have narrowed their criteria without adequate consultation with families. Please sign to support local families.

Sign here:

https://you.38degrees.org.uk/petitions/special-education-needs-and-disability-school-transport-crisis-waltham-forest